It’s each mother or father’s worst nightmare: their child was born unhealthy. When child Maci was born, her dad and mom have been devastated to search out out that she had a wide range of coronary heart issues.
Her dad and mom clarify on her Facebook web page that “She was originally home on hospice until a surgeon was found who felt he could successfully operate on Maci’s heart.”
Like little Ari, Maci had coronary heart surgical procedure as an toddler, and now she’s handed the one yr mark.
Her dad and mom clarify:
Four days after she turned a yr outdated, she was additionally recognized with Mowat-Wilson Syndrome. This syndrome is accountable for her cardiac defects, GI points, and eye/imaginative and prescient points.
This syndrome additionally causes average to extreme mental incapacity. Despite these diagnoses, Maci is pleased and thriving, and she or he is the sunshine of our lives! We wouldn’t change her for the world! This is our journey…
Maci additionally has an older brother, and her dad and mom just lately determined to elucidate the fundamentals of Maci’s situation to him. They weren’t certain how he’d react, however his response blew them away.
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